Amos Michael Robinson was born on September 19th, 2013 to the joyous parents, J.T. and Christine Robinson. I am J.T. I have started this website to keep family and friends up to date on his journey to recovery from cancer.
My wife, Christine and I noticed that he was becoming uncomfortable at night and lethargic during the day. His little appetite began to shrink and we noticed some tiny red dots, known as petechiae, had formed on his chest. We decided to take him to see his pediatrician, and the whole situation escalated quickly when some blood work indicated some abnormal cells in his blood stream. Amos was promptly checked into Primary Children's Hospital in Salt Lake City near our home in Ogden, Utah. It was not long before we were informed that the culprit to his ailments pointed towards the dreaded word that no parent ever wants to hear, cancer.
^Recently, Christine and I visited Kyoto, Japan where we bought Amos this adorable little Samurai outfit, and its significance now has taken on a whole new meaning as we have now come to call him our little samurai warrior fighting his own personal war against cancer.
^In the hospital our brave little man had endured pokes, prods, and tests, upon tests, upon tests. The fabulous staff at Primary Children's have been working diligently to arrive at a definitive diagnosis for the type and form of cancer that is ravaging my poor little boy's tiny little body. He has remained in relatively good spirits throughout the ordeal. That is more then I can say for myself. As any new parent can imagine the news felt like some kind of terrible nightmare to Christine and I. We cried, sobbed, and our minds ran wild with awful thoughts as all of our grand visions of little league baseball, tiny little soccer cleats and shin guards seemed to fade before our very eyes. As we began to get our heads wrapped around the reality of the situation, we began to settle in for the fight that was ahead. Hours melted into days, and then days into our first week living in a small hospital room of the cancer wing on the fourth floor of the hospital. Still no definitive diagnosis. A CT scan of his little body showed a variety of tumors in his body from his neck, down his spine, and into his abdomen. The doctors performed a surgery to go into his belly and biopsy one of the tumors to try to figure out exactly what kind of cancer Amos is fighting.
^Amos came through the surgery very well. With a low blood platelet count there was a real fear of him bleeding out during the surgery, but no such events occurred. He was returned to his room where his mom and I were able to be with him, and help keep him comfortable as he recovered. Now he has his first scar before he ever said his first words or took his first steps. A broviac central line was implanted into a vessel above his heart to administer treatments including the eventual chemo therapy that he will most likely require to attack the cancer cells. In the photo above, Amos is resting soundly after the procedure, and his broviac line is visible on his tiny little chest. As the doctors labor painstakingly to determine what is ravaging his young body the leading suspects have changed from Leukemia, to Neuroblastoma, to Lymphoma, and then yet again to the unknown. So as the doctors continue to chase down lead after lead under microscopes and test results, we wait...
